Dementia that is diagnosed before the age of 65 is called young onset dementia. People who have young onset dementia are sometimes described as:
- younger people with dementia
- people with working age dementia
Young onset dementia is much less common than dementia in older people. It is estimated that there are more than 42,000 people living with young onset dementia in the UK.
People diagnosed with young onset dementia may need to adjust to living with this long-term condition. They may be concerned about how their diagnosis will impact on them and their family.
Young People with Dementia (YPWD) charity
YPWD work with colleagues across health and social care services to provide support for people with young onset dementia and their family and carers.
This includes activities and workshops which are risk positive and age appropriate. They also provide carer support groups, including for rare dementias, and provide social activities for families.
To find out more:
- visit the YPWD website
- phone: 0118 207 2880
Our dementia adviser offers a specialised information and advice service for people diagnosed with young onset dementia and their family and carers.
They can offer advice on various aspects of living with dementia including:
- planning for the future
- financial benefits
- activities and events
- signposting to more support
To find out more, visit our Dementia Advisory Service page.
Admiral Nurses provide emotional and practical support to family members and carers of people with young onset dementia.
The Admiral Nurse can provide advice and consultancy to fellow professionals and carers. They are also involved in education programmes for carers.
For more information on how to get support from the Admiral Nurse in your area, visit the Admiral Nurses page on the YPWD website.
Understanding young onset dementia - course
We host regular education courses for people diagnosed with dementia and their family and friends. They provide people with an opportunity to learn more about dementia. They are also a way to meet up with others in a similar situation.
To find out more about the course and to register, contact the Dementia Adviser.
For more information visit:
If you are working you may find it helpful to download the Alzheimer’s Society booklet on employment (pdf download - 2.7MB).